Warrior Mom; Misty

Misty's Story

Evan was born October 2012, and is currently 10 months old. He was diagnosed in utero with Hydrocephalus. At only a week old he had surgery for shunt placement in order to remove the excess cerebrospinal fluid from his brain. He was born with no gag reflex, and because of this has at 2 weeks of age a  G-Tube (gastrointestinal tube) was placed which he receives all of his formula through. During the time after his birth he learned that he is blind, and has detached retinas. He has also failed all hearing tests, although as his mother, I know he does have some hearing. Evan was released from the hospital at 3 weeks of age. At 2 months of age he began to have seizures, and it was then we learned that he was epileptic, thankfully his seizures have since been controlled. At 5 months he was diagnosed with Walker Warburg Syndrome, which is a severe congenital muscle dystrophy disorder associated with muscles of the eye, and brain disease. Because of this his muscles tone is extremely weak. His life prognosis for life in under 3 years. Yet as his mother, I will not give up! I will fight for him every second of his life! 

 

Read more of Evan & Misty's Story by following Evan's Facebook @ Team Evan

 

 

 

 

Warrior Mom story written by Misty Thompson as told on facebook

 



For a related story, check out Kimbra's Story